The history and use of cancer registry data by public health cancer control programs in the United States
Sign Up to like & getrecommendations! Published in 2017 at "Cancer"
DOI: 10.1002/cncr.30905
Abstract: Because cancer registry data provide a census of cancer cases, registry data can be used to: 1) define and monitor cancer incidence at the local, state, and national levels; 2) investigate patterns of cancer treatment;… read more here.
Keywords: cancer; cancer registry; registry data; cancer control ... See more keywords
Persistence on biologic DMARD monotherapy after achieving rheumatoid arthritis disease control on combination therapy: retrospective analysis of corrona registry data
Sign Up to like & getrecommendations! Published in 2020 at "Rheumatology International"
DOI: 10.1007/s00296-020-04667-5
Abstract: Biological disease-modifying antirheumatic drugs (bDMARDs) monotherapy may enhance adherence and decrease adverse events compared to combination therapy with conventional synthetic DMARDs (csDMARDs); however, persistence with bDMARD monotherapy has not been extensively studied. We explore persistence… read more here.
Keywords: persistence; combination therapy; registry data; monotherapy ... See more keywords
Utility of linking survey and registry data to evaluate interventions and policies to address disparities in breast cancer survivorship among young women.
Sign Up to like & getrecommendations! Published in 2021 at "Evaluation and program planning"
DOI: 10.1016/j.evalprogplan.2021.101967
Abstract: PURPOSE There is limited research linking data sources to evaluate the multifactorial impacts on the quality of treatment received and financial burden among young women with breast cancer. To address this gap and support future… read more here.
Keywords: registry data; among young; survey; breast cancer ... See more keywords
Using a State Birth Registry as a Quality Improvement Tool
Sign Up to like & getrecommendations! Published in 2017 at "American Journal of Perinatology"
DOI: 10.1055/s-0037-1600898
Abstract: Background Birth registry data are universally collected, generating large administrative datasets. However, these data are typically not used for quality improvement (QI) initiatives in perinatal medicine because the quality and timeliness of the information is… read more here.
Keywords: birth registry; registry data; quality improvement; registry ... See more keywords
Linking Electronic Health Record and Trauma Registry Data: Assessing the Value of Probabilistic Linkage.
Sign Up to like & getrecommendations! Published in 2018 at "Methods of information in medicine"
DOI: 10.1055/s-0039-1681087
Abstract: BACKGROUND Electronic health record (EHR) systems contain large volumes of novel heterogeneous data that can be linked to trauma registry data to enable innovative research not possible with either data source alone. OBJECTIVE This article… read more here.
Keywords: trauma registry; registry data; record; linkage ... See more keywords
Infectious Surgical Complications are Not Dichotomous: Characterizing Discordance Between Administrative Data and Registry Data
Sign Up to like & getrecommendations! Published in 2018 at "Annals of Surgery"
DOI: 10.1097/sla.0000000000002041
Abstract: Objective: To characterize reasons for discordance between administrative data and registry data in the determination of postoperative infectious complications. Background: Data regarding the occurrence of postoperative surgical complications are identified through either administrative or registry… read more here.
Keywords: registry data; discordance administrative; administrative data; data registry ... See more keywords
Assessment of long‐term outcomes post living liver donation highlights the importance of scientific integrity when presenting transplant registry data
Sign Up to like & getrecommendations! Published in 2022 at "American Journal of Transplantation"
DOI: 10.1111/ajt.17045
Abstract: Living donor liver transplantation has expanded in recent years, particularly in North America. As experience with this procedure has matured over the last 25 years, centers are increasingly faced with potential living donors who are… read more here.
Keywords: registry data; long term; liver; liver donation ... See more keywords
The value of local registry data for describing cervical cancer management and outcomes over three decades in Australia
Sign Up to like & getrecommendations! Published in 2018 at "European Journal of Cancer Care"
DOI: 10.1111/ecc.12760
Abstract: Registry data on invasive cervical cancers (n = 1,274) from four major hospitals (1984-2012) were analysed to determine their value for informing local service delivery in Australia. The methodology comprised disease-specific survival analyses using Kaplan-Meier product-limit estimates… read more here.
Keywords: registry data; value local; data describing; local registry ... See more keywords
P248 Cfrd is not an independent risk factor for stenotrophomonas maltophilia acquisition – 5 year analysis of uk cf registry data
Sign Up to like & getrecommendations! Published in 2017 at "Thorax"
DOI: 10.1136/thoraxjnl-2017-210983.390
Abstract: Introduction Recently, Stenotrophomonas maltophilia (SM) has been shown to have an increased prevalence in the sputum of people with CF-related diabetes (CFRD), raising the question as to whether CFRD is a risk factor for its… read more here.
Keywords: registry data; analysis; cfrd; microbiology ... See more keywords
Machine learning based survival prediction in Glioma using large-scale registry data
Sign Up to like & getrecommendations! Published in 2022 at "Health Informatics Journal"
DOI: 10.1177/14604582221135427
Abstract: Gliomas are the most common central nervous system tumors exhibiting poor clinical outcomes. The ability to estimate prognosis is crucial for both patients and providers in order to select the most appropriate treatment. Machine learning… read more here.
Keywords: registry data; accuracy; machine learning; prediction ... See more keywords
Augmenting cancer registry data with health survey data with no cases in common: the relationship between pre-diagnosis health behaviour and post-diagnosis survival in oesophageal cancer
Sign Up to like & getrecommendations! Published in 2020 at "BMC Cancer"
DOI: 10.1186/s12885-020-06990-3
Abstract: Background For epidemiological research, cancer registry datasets often need to be augmented with additional data. Data linkage is not feasible when there are no cases in common between data sets. We present a novel approach… read more here.
Keywords: registry data; diagnosis; cancer registry; cancer ... See more keywords