PRospective REgistry of PAtients in REfractory cardiogenic shock—The PREPARE CardShock registry
Sign Up to like & getrecommendations! Published in 2022 at "Catheterization and Cardiovascular Interventions"
DOI: 10.1002/ccd.30327
Abstract: Cardiogenic shock (CS) is a hemodynamically complex multisystem syndrome associated with persistently high morbidity and mortality. As CS is characterized by progressive failure to provide adequate systemic perfusion, supporting end‐organ perfusion using mechanical circulatory support… read more here.
Keywords: patients refractory; registry; registry patients; prospective registry ... See more keywords
Data from the European registry for patients with McArdle disease and other muscle glycogenoses (EUROMAC)
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DOI: 10.1186/s13023-020-01562-x
Abstract: Background The European registry for patients with McArdle disease and other muscle glycogenoses (EUROMAC) was launched to register rare muscle glycogenoses in Europe, to facilitate recruitment for research trials and to learn about the phenotypes… read more here.
Keywords: mcardle disease; muscle glycogenoses; muscle; european registry ... See more keywords
Development and Implementation of the AIDA International Registry for Patients With Still's Disease
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DOI: 10.3389/fmed.2022.878797
Abstract: Objective Aim of this paper is to present the design, construction, and modalities of dissemination of the AutoInflammatory Disease Alliance (AIDA) International Registry for patients with systemic juvenile idiopathic arthritis (sJIA) and adult-onset Still's disease… read more here.
Keywords: still disease; patients still; registry; international registry ... See more keywords
Development and Implementation of the AIDA International Registry for Patients With VEXAS Syndrome
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DOI: 10.3389/fmed.2022.926500
Abstract: Objective The aim of this paper is to present the AutoInflammatory Disease Alliance (AIDA) international Registry dedicated to Vacuoles, E1 enzyme, X-linked, Autoinflammatory, Somatic (VEXAS) syndrome, describing its design, construction, and modalities of dissemination. Methods… read more here.
Keywords: patients vexas; aida international; registry; international registry ... See more keywords