Use and Reporting of Patient-Reported Outcomes in Trials of Palliative Radiotherapy
Sign Up to like & getrecommendations! Published in 2022 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2022.31930
Abstract: Key Points Question How commonly are patient-reported outcomes (PROs) used and how well are they reported in clinical trials of palliative radiotherapy? Findings In this systematic review that included 225 published clinical trials representing 24 281… read more here.
Keywords: reported outcomes; trials palliative; patient reported; palliative radiotherapy ... See more keywords
Identifying Important Clinical Symptoms in Children With Severe Neurological Impairment Using Parent-Reported Outcomes of Symptoms.
Sign Up to like & getrecommendations! Published in 2020 at "JAMA pediatrics"
DOI: 10.1001/jamapediatrics.2020.2987
Abstract: This cross-sectional study evaluates whether the Parent-Reported Outcomes of Symptoms system identifies more symptoms than clinicians do among children with severe neurological impairment. read more here.
Keywords: reported outcomes; outcomes symptoms; parent reported; severe neurological ... See more keywords
Validity and Reliability of Clinical and Patient‐Reported Outcomes in Multisystem Proteinopathy 1
Sign Up to like & getrecommendations! Published in 2025 at "Annals of Clinical and Translational Neurology"
DOI: 10.1002/acn3.70064
Abstract: Valosin‐containing protein (VCP)‐associated multisystem proteinopathy 1 (MSP1) is caused by variants in the VCP gene. MSP1 results in various phenotypes including progressive myopathy, Paget's disease of bone, frontotemporal dementia, amyotrophic lateral sclerosis, and parkinsonism, among… read more here.
Keywords: patient reported; reported outcomes; multisystem proteinopathy; reliability ... See more keywords
Using percentiles in the interpretation of Patient‐Reported Outcomes Measurement Information System scores: Guidelines for autism
Sign Up to like & getrecommendations! Published in 2022 at "Autism Research"
DOI: 10.1002/aur.2833
Abstract: The objectives of this study were to (1) demonstrate the application of percentiles to advance the interpretation of patient‐reported outcomes and (2) establish autism‐specific percentiles for four Patient‐Reported Outcomes Measurement Information System (PROMIS) measures. PROMIS… read more here.
Keywords: reported outcomes; promis; patient reported; autism ... See more keywords
Clinical research associates experience with missing patient reported outcomes data in cancer randomized controlled trials
Sign Up to like & getrecommendations! Published in 2021 at "Cancer Medicine"
DOI: 10.1002/cam4.3826
Abstract: Missing patient reported outcomes data threaten the validity of PRO‐specific findings and conclusions from randomized controlled trials by introducing bias due to data missing not at random. Clinical Research Associates are a largely unexplored source… read more here.
Keywords: reported outcomes; research; randomized controlled; missing patient ... See more keywords
Patient‐reported outcomes provide prognostic information for survival in patients with diffuse large B‐cell lymphoma: Analysis of 1239 patients from the GOYA study
Sign Up to like & getrecommendations! Published in 2022 at "Cancer Medicine"
DOI: 10.1002/cam4.4692
Abstract: We investigated the prognostic value of pretreatment patient‐reported outcomes (PROs) in patients with diffuse large B‐cell lymphoma (DLBCL) receiving obinutuzumab/rituximab plus chemotherapy in the GOYA phase III study. read more here.
Keywords: reported outcomes; patient reported; cell lymphoma; large cell ... See more keywords
Patient‐reported outcomes among patients with systemic mastocytosis in routine clinical practice: Results of the TouchStone SM Patient Survey
Sign Up to like & getrecommendations! Published in 2022 at "Cancer"
DOI: 10.1002/cncr.34420
Abstract: Systemic mastocytosis (SM) is a rare clonal neoplasm driven by KIT D816V and other mutations. Data were collected from the patient perspective on disease burden and included an SM‐specific symptom assessment tool. read more here.
Keywords: reported outcomes; mastocytosis; patient reported; systemic mastocytosis ... See more keywords
Adjuvant platinum versus capecitabine for residual, invasive, triple‐negative breast cancer: Patient‐reported outcomes in ECOG‐ACRIN EA1131
Sign Up to like & getrecommendations! Published in 2024 at "Cancer"
DOI: 10.1002/cncr.35187
Abstract: Patient‐reported outcomes (PROs) are a better tool for evaluating the experiences of patients who have symptomatic, treatment‐associated adverse events (AEs) compared with clinician‐rated AEs. The authors present PROs assessing health‐related quality of life (HRQoL) and… read more here.
Keywords: patient reported; ecog acrin; reported outcomes; versus ... See more keywords
Letter to the Editor: Patient‐Reported Outcomes for Nonalcoholic Fatty Liver Disease/Nonalcoholic Steatohepatitis: Rationale for Expanded Use
Sign Up to like & getrecommendations! Published in 2018 at "Hepatology"
DOI: 10.1002/hep.30356
Abstract: 443 placebo is observed in patient-reported outcomes or subjective measures; the effect of placebo on objective biomarkers or hard outcomes such as mortality are likely minimal.(2) Hence, in this study, when evaluating mortality as primary… read more here.
Keywords: reported outcomes; indirect comparisons; effect; effect estimates ... See more keywords
Measuring what matters: why and how to include patient reported outcomes in clinical care and research on inborn errors of metabolism.
Sign Up to like & getrecommendations! Published in 2023 at "Journal of inherited metabolic disease"
DOI: 10.1002/jimd.12622
Abstract: INTRODUCTION Patient reported outcomes (PROs) are generally defined as "any report of the status of a patient's health condition that comes directly from the patient, without interpretation of the patient's response by a clinician or… read more here.
Keywords: reported outcomes; health; patient reported; care ... See more keywords
Patient reported outcomes in orthopaedics
Sign Up to like & getrecommendations! Published in 2017 at "Journal of Orthopaedic Research"
DOI: 10.1002/jor.23604
Abstract: Patient reported outcome measures (PROMs) are key tools when performing clinical research and PROM data are increasingly used to inform clinical decision‐making, patient‐centered care, health policy and more recently, reimbursement decisions. PROMs must possess particular… read more here.
Keywords: reported outcomes; research; patient; outcomes orthopaedics ... See more keywords