Standards for the Reporting of Genetic Counseling Interventions in Research and Other Studies (GCIRS): an NSGC Task Force Report
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DOI: 10.1007/s10897-017-0076-9
Abstract: As the demand for evidence to support the value of genetic counseling increases, it is critical that reporting of genetic counseling interventions in research and other types of studies (e.g. process improvement or service evaluation… read more here.
Keywords: research; counseling; genetic counseling; counseling interventions ... See more keywords
Reporting Genetic Findings to Individual Research Participants: Guidelines From the Swiss Personalized Health Network
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DOI: 10.3389/fgene.2020.585820
Abstract: In 2017 the Swiss federal government established the Swiss Personalized Health Network (SPHN), a nationally coordinated data infrastructure for genetic research. The SPHN advisory group on Ethical, Legal, and Social Implications (ELSI) was tasked with… read more here.
Keywords: research; swiss personalized; reporting genetic; genetic research ... See more keywords