Overview of the ChILD Research Network: A roadmap for progress and success in defining rare diseases
Sign Up to like & getrecommendations! Published in 2020 at "Pediatric Pulmonology"
DOI: 10.1002/ppul.24808
Abstract: Children's interstitial and diffuse lung diseases are a diverse group of rare lung disorders that present in childhood with diffuse pulmonary infiltrates and respiratory signs and symptoms. Children with these disorders face high morbidity and… read more here.
Keywords: research; progress; children interstitial; research network ... See more keywords
Outcomes of SARS-CoV-2 infection in patients with pulmonary sarcoidosis: A multicenter retrospective research network study
Sign Up to like & getrecommendations! Published in 2021 at "Respiratory Medicine"
DOI: 10.1016/j.rmed.2021.106538
Abstract: Background Analyses of COVID-19 infection outcomes in patients with preexisting pulmonary sarcoidosis are lacking and are limited to case reports or small case series with the largest study reporting outcomes of 37 patients. Research Question… read more here.
Keywords: study; sarcoidosis; patients pulmonary; pulmonary sarcoidosis ... See more keywords
Foundation of the Newborn Screening Translational Research Network and its tools for research
Sign Up to like & getrecommendations! Published in 2018 at "Genetics in Medicine"
DOI: 10.1038/s41436-018-0334-8
Abstract: In the past 20 years, several policy activities were undertaken that shaped today’s newborn screening (NBS) programs and their associated NBS research activities: the Newborn Screening Task Force Report; the Child Health Act of 2000,… read more here.
Keywords: research; screening translational; translational research; newborn screening ... See more keywords
Preparing students for social work practice in contemporary societies: insights from a transnational research network
Sign Up to like & getrecommendations! Published in 2020 at "European Journal of Social Work"
DOI: 10.1080/13691457.2020.1793108
Abstract: ABSTRACT This paper arises from a transnational research network investigating social work education. University based social work programmes from four European countries (Ireland, Italy, Norway, and the U.K.) shared a similar concern: how educators can… read more here.
Keywords: work; transnational research; social work; practice ... See more keywords
The Quality of Life of Children Under Chiropractic Care Using PROMIS-25: Results from a Practice-Based Research Network.
Sign Up to like & getrecommendations! Published in 2018 at "Journal of alternative and complementary medicine"
DOI: 10.1089/acm.2017.0141
Abstract: OBJECTIVES To characterize pediatric chiropractic and assess pediatric quality of life (QoL). DESIGN A prospective cohort. Setting/Locations: Individual offices within a practice-based research network located throughout the United States. SUBJECTS A convenience sample of children… read more here.
Keywords: care; quality life; based research; chiropractic care ... See more keywords
Prepared to Act: Lessons Learned by the Special Pathogens Research Network, Based on Collaborations with the NIAID-Led Adaptive COVID-19 Treatment Trial.
Sign Up to like & getrecommendations! Published in 2022 at "Health security"
DOI: 10.1089/hs.2021.0178
Abstract: The need for well-controlled clinical trials is fundamental to advancing medicine. Care should be taken to maintain high standards in trial design and conduct even during emergency medical events such as an infectious disease outbreak.… read more here.
Keywords: special pathogens; pathogens research; trial; research network ... See more keywords
The Patient-Centered Outcomes Research Network Antibiotics and Childhood Growth Study: Implementing Patient Data Linkage.
Sign Up to like & getrecommendations! Published in 2019 at "Population health management"
DOI: 10.1089/pop.2019.0089
Abstract: PCORnet, the Patient-Centered Outcomes Research Network, is comprised of health systems and health plans that transform electronic health records (EHRs) and claims data to a common data model (CDM) to facilitate real-world clinical research. Because… read more here.
Keywords: health; patient centered; research network; patient ... See more keywords
Creating a social media strategy for an international cardiothoracic research network: A scoping review.
Sign Up to like & getrecommendations! Published in 2023 at "European journal of cardiovascular nursing"
DOI: 10.1093/eurjcn/zvad029
Abstract: A cardiac surgery international nursing and allied professional research network titled CONNECT, was created to strengthen collaborative cardiac surgery research through shared initiatives including supervision, mentorship, workplace exchange programs and multi-site clinical research. As with… read more here.
Keywords: social media; review; scoping review; research network ... See more keywords
Mortality Patterns in Candidemia: Insights from a Multispecies Analysis Using a Global Research Network.
Sign Up to like & getrecommendations! Published in 2024 at "Medical mycology"
DOI: 10.1093/mmy/myae122
Abstract: Understanding the impact of different Candida species on patient outcomes is crucial for effective management and treatment strategies. This study aims to comprehensively analyze the association between Candida species and mortality in documented candidemia. We… read more here.
Keywords: research network; global research; mortality; candida species ... See more keywords
Design, Implementation, and Evolution of the Medicaid Outcomes Distributed Research Network (MODRN)
Sign Up to like & getrecommendations! Published in 2022 at "Medical Care"
DOI: 10.1097/mlr.0000000000001751
Abstract: Background: In the US, Medicaid covers over 80 million Americans. Comparing access, quality, and costs across Medicaid programs can provide policymakers with much-needed information. As each Medicaid agency collects its member data, multiple barriers prevent… read more here.
Keywords: network; state; medicaid; research network ... See more keywords
Characteristics and outcomes of COVID-19 in patients with HIV: a multi-center research network study.
Sign Up to like & getrecommendations! Published in 2020 at "AIDS"
DOI: 10.1097/qad.0000000000002666
Abstract: OBJECTIVE We studied clinical outcomes of COVID-19 infection in patients living with HIV (PLH) in comparison to non-HIV population. DESIGN Analysis of a multicenter research network TriNETX was performed including patients > 10 years of… read more here.
Keywords: mortality; plh; research network; outcomes covid ... See more keywords