Rare disease research powered by empowered patients: solving the zebra puzzle through social media.
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DOI: 10.1002/cncr.34765
Abstract: PLAIN LANGUAGE SUMMARY Social media platforms like Facebook and Twitter have revolutionized rare disease research and have catalyzed the connection among patients with rare cancers. A new study from the Germ Cell Tumor Survivor Sisters… read more here.
Keywords: social media; rare disease; disease; disease research ... See more keywords