Diagnostic uncertainties, ethical tensions, and accounts of role responsibilities in genetic counseling communication
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DOI: 10.1002/jgc4.1282
Abstract: Diagnostic uncertainties are intricately associated with genomic testing—especially concerning new technologies such as exome sequencing—with test results being either inconclusive or generating secondary findings or showing variants of uncertain significance. In the process of genetic… read more here.
Keywords: genetic counseling; role responsibilities; ethical tensions; diagnostic uncertainties ... See more keywords
“It’s a delicate dance”: How informal caregivers experience the role and responsibilities of supporting someone living with a lower-grade glioma
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DOI: 10.1093/nop/npae096
Abstract: Abstract Background People with lower-grade gliomas (LGG) often require long-term support with a condition that causes substantial symptom burden and is likely to progress. Partners, family, and friends often become informal caregivers (IC), but the… read more here.
Keywords: informal caregivers; role; responsibilities supporting; lower grade ... See more keywords