HIPAA's Individual Right of Access to Genomic Data: Reconciling Safety and Civil Rights.
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DOI: 10.1016/j.ajhg.2017.12.004
Abstract: In 2014, the United States granted individuals a right of access to their own laboratory test results, including genomic data. Many observers feel that this right is in tension with regulatory and bioethical standards designed… read more here.
Keywords: safety; genomic data; civil rights; safety civil ... See more keywords