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Published in 2018 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2018.1539777
Abstract: Abstract Purpose: There is a paucity of research into self-management strategies employed by stroke survivors outside of formal rehabilitation. This study aimed to explore stroke survivors’ experiences of, and strategies for self-managing their severely impaired…
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Keywords:
stroke survivors;
management;
severely impaired;
managing severely ... See more keywords
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Published in 2022 at "Blood"
DOI: 10.1182/blood.2021013477
Abstract: Niemann-Pick disease type C1 (NP-C1) is a rare lysosomal storage disorder resulting from mutations in an endo-lysosomal cholesterol transporter, NPC1. Despite typically presenting with pronounced neurological manifestations, NP-C1 also resembles long-term congenital immunodeficiencies that arise…
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Keywords:
function;
severely impaired;
niemann pick;
type ... See more keywords
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Published in 2020 at "Health and Quality of Life Outcomes"
DOI: 10.1186/s12955-020-01542-6
Abstract: Background Many previous studies have reported factors that contribute to health-related quality of life (HRQoL) for a single skin disease. However, little is known about generalized factors associated with HRQoL across skin diseases. The objective…
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Keywords:
skin disease;
disease;
severely impaired;
hrqol ... See more keywords