“I am sick, but that’s not all that I am”: patient perspectives on psychological adaptation over time to inborn errors of immunity
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DOI: 10.1007/s12687-024-00758-z
Abstract: Inborn errors of immunity (IEI) are rare heritable disorders of the immune system predisposing to atypical infections, autoimmunity, inflammation, and risk of malignancy. Adaptation is the process of incorporating stressful experiences into one’s life; these… read more here.
Keywords: sick patient; adaptation; patient perspectives; time ... See more keywords