Hidradenitis suppurativa on Facebook: thematic and content analyses of patient support group
Sign Up to like & getrecommendations! Published in 2019 at "Archives of Dermatological Research"
DOI: 10.1007/s00403-019-02027-3
Abstract: Online support groups present a sheltered and partially anonymous zone where patients can unload that which disturbs and preoccupies them. In this qualitative study, we explored the use of a Facebook support group for Hidradenitis… read more here.
Keywords: support group; hidradenitis suppurativa; support;
Expert agreed standards for the selection and development of cancer support group leaders: an online reactive Delphi study
Sign Up to like & getrecommendations! Published in 2017 at "Supportive Care in Cancer"
DOI: 10.1007/s00520-017-3819-0
Abstract: PurposeThe aim of this study was to develop pragmatic, consensus-based minimum standards for the role of a cancer support group leader. Secondly, to produce a structured interview designed to assess the knowledge, skills and attributes… read more here.
Keywords: cancer; support group; cancer support; group leaders ... See more keywords
Interactions and perceptions of patients with rheumatoid arthritis participating in an online support group
Sign Up to like & getrecommendations! Published in 2020 at "Clinical Rheumatology"
DOI: 10.1007/s10067-020-04967-y
Abstract: Objective Peer support is important for psychosocial well-being in patients with rheumatoid arthritis (RA). Our objective was to assess the interactions, engagement, and perceptions of participants in an online support group for patients with RA.… read more here.
Keywords: group; support group; rheumatoid arthritis; online support ... See more keywords
Pilot investigation into the need and feasibility of a psychoeducation and support group for male caregivers of those with Huntington's disease.
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DOI: 10.1007/s12687-021-00535-2
Abstract: The psychosocial sequelae of caregiving in Huntington's disease (HD) have been shown to be extensive, even in comparison with other progressive neurological disorders. Based on observed clinical need, this investigation aimed to identify psychoeducational and… read more here.
Keywords: male caregivers; huntington disease; group; support group ... See more keywords
Coping with Dementia Clinical Trial Interruption: Virtual Support Group for Participants and Study Partners
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DOI: 10.1016/j.jagp.2021.01.109
Abstract: Introduction Biopsychosocial benefits of participation in longitudinal research – increased access to specialized physicians, frequent medical supervision, social support from research staff, a sense of purpose and routine, etc. – have been documented and are… read more here.
Keywords: clinical trial; support group; trial interruption; support ... See more keywords
“It’s really unexplainable, but everyone here got it:” Analysis of an ASD sibling support group for emerging adults
Sign Up to like & getrecommendations! Published in 2021 at "Research in Autism Spectrum Disorders"
DOI: 10.1016/j.rasd.2021.101857
Abstract: Abstract Background While the basic and applied literature on people with autism continues to expand in helpful ways, including substantial research on their families, less research exists focused specifically on siblings, and little on older… read more here.
Keywords: research; analysis; group; group emerging ... See more keywords
Challenging generalisations: Leveraging the power of individuality in support group interactions
Sign Up to like & getrecommendations! Published in 2021 at "Language in Society"
DOI: 10.1017/s0047404520000603
Abstract: Abstract Explicit generalisations are statements that attribute a characteristic to all members of a social category (e.g. drug users). This article examines the tensions and negotiations that the use of generalisations prompts within support group… read more here.
Keywords: individuality; challenging generalisations; support group; group interactions ... See more keywords
Preliminary Study of the Effects of a Dysphagia Support Group on Quality of Life.
Sign Up to like & getrecommendations! Published in 2023 at "American journal of speech-language pathology"
DOI: 10.1044/2023_ajslp-22-00278
Abstract: PURPOSE Dysphagia (swallowing difficulties) can greatly decrease quality of life for individuals with dysphagia and can lead to caregiver burden and third-party disability. Support groups have been shown to be effective in improving quality of… read more here.
Keywords: group; quality life; support; support group ... See more keywords
Critical reflection: a general practice support group experience.
Sign Up to like & getrecommendations! Published in 2018 at "Australian journal of primary health"
DOI: 10.1071/py17092
Abstract: The problem of medical practitioner burnout and loss of morale remains an ongoing challenge in the Australian health workforce. Collegiate recommendations are individualistic or personalised, or worse, punitive. Critical reflection in supervision is a long-accepted… read more here.
Keywords: critical reflection; support group; practice;
Patient Perceptions of Retinal Detachment Management and Recovery through Social Media.
Sign Up to like & getrecommendations! Published in 2023 at "Seminars in ophthalmology"
DOI: 10.1080/08820538.2023.2168492
Abstract: PURPOSE Social media support groups can provide accessibility to advice and emotional regarding medical topics, such as retinal detachment repair, but this is almost universally provided by laypersons. We sought to determine how topics related… read more here.
Keywords: retinal detachment; social media; support group; misinformation ... See more keywords
Actual Solidarity through Virtual Support: A Pilot Descriptive Study of an Online Support Group for Bereaved Parents.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of palliative medicine"
DOI: 10.1089/jpm.2020.0617
Abstract: Background: Hospital-based support for bereaved parents is regarded as best practice. Little is known about parental perceptions or programmatic potential of online grief support. Objectives: To learn from bereaved parent participants' experiences with an online… read more here.
Keywords: group; bereaved parents; descriptive study; support group ... See more keywords