Conceptualization of Surrogate Decision-making Among Spokespersons for Chronically Ill Patients
Sign Up to like & getrecommendations! Published in 2022 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2022.45608
Abstract: Key Points Question How do patient spokespersons distinguish surrogate medical decision-making from patient advocacy? Findings This qualitative study of a subset of 36 participants in a randomized clinical trial found substantial variability in how spokespersons… read more here.
Keywords: conceptualization surrogate; decision making; decision; making among ... See more keywords
Quality of life of persons living with HIV and congruence with surrogate decision-makers
Sign Up to like & getrecommendations! Published in 2018 at "Quality of Life Research"
DOI: 10.1007/s11136-018-2002-5
Abstract: PurposePhysicians and caregivers rate patient quality of life (QOL) lower than patients rate their own QOL. This study investigated discrepancies between self-assessments of patient QOL by adults with HIV and their surrogate decision-makers.MethodsWe collected baseline… read more here.
Keywords: quality life; life; decision makers; surrogate decision ... See more keywords
Visualizing surrogate decision trees of convolutional neural networks
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DOI: 10.1007/s12650-019-00607-z
Abstract: Abstract Interpreting the decision-making of black boxes in machine learning becomes urgent nowadays due to their lack of transparency. One effective way to interpret these models is to transform them into interpretable surrogate models such… read more here.
Keywords: decision; neural networks; black boxes; surrogate decision ... See more keywords
The Trial of Ascertaining Individual Preferences for Loved Ones' Role in End-of-Life Decisions (TAILORED) Study: A Randomized Controlled Trial to Improve Surrogate Decision Making.
Sign Up to like & getrecommendations! Published in 2017 at "Journal of pain and symptom management"
DOI: 10.1016/j.jpainsymman.2017.07.004
Abstract: CONTEXT Patients with terminal illnesses often require surrogate decision makers. Prior research has demonstrated high surrogate stress, and that despite standards promoting substituted judgment, most patients do not want their surrogates to make pure substituted… read more here.
Keywords: decision; trial; control; surrogate decision ... See more keywords
Effect of Advance Care Planning on Surrogate Decision Makers' Preparedness for Decision Making: Results of a Mixed-Methods Randomized Controlled Trial.
Sign Up to like & getrecommendations! Published in 2020 at "Journal of palliative medicine"
DOI: 10.1089/jpm.2020.0238
Abstract: Background: Advance care planning (ACP) is intended to help patients and their spokespersons prepare for end-of-life decision making, yet little is known about what factors influence the extent to which spokespersons feel prepared for that… read more here.
Keywords: decision; trial; surrogate decision; decision making ... See more keywords
Surrogate Decision Makers Need Better Preparation for Their Role: Advice from Experienced Surrogates.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of palliative medicine"
DOI: 10.1089/jpm.2021.0283
Abstract: Background: Surrogate decision makers are required to make difficult end-of-life decisions with little preparation. Little is known about what surrogates may need to adequately prepare for their role, and few resources exist to prepare them.… read more here.
Keywords: decision; decision makers; surrogate decision; role ... See more keywords
Do They Have a Choice? Surrogate Decision-Making After Severe Acute Brain Injury.
Sign Up to like & getrecommendations! Published in 2023 at "Critical care medicine"
DOI: 10.1097/ccm.0000000000005850
Abstract: OBJECTIVES In the early phase of severe acute brain injury (SABI), surrogate decision-makers must make treatment decisions in the face of prognostic uncertainty. Evidence-based strategies to communicate uncertainty and support decision-making are lacking. Our objective… read more here.
Keywords: decision; surrogate decision; decision making; brain injury ... See more keywords
Nontraditional Surrogate Decision Makers for Hospitalized Older Adults
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DOI: 10.1097/mlr.0000000000000890
Abstract: Background: Without advanced preparation of legal documents, state law determines who may serve as a surrogate decision maker for patients in hospitals. Objectives: To examine the relationship characteristics associated with traditional versus nontraditional health care… read more here.
Keywords: decision; decision makers; hospitalized older; surrogate decision ... See more keywords
Ethical frameworks for surrogates’ end-of-life planning experiences
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DOI: 10.1177/0969733016638145
Abstract: Background: Despite the growing body of knowledge about surrogate decision making, we know very little about the use of ethical frameworks (including ethical theories, principles, and concepts) to understand surrogates’ day-to-day experiences in end-of-life care… read more here.
Keywords: end life; decision making; ethical frameworks; surrogate decision ... See more keywords
Grounds for surrogate decision-making in Japanese clinical practice: a qualitative survey
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DOI: 10.1186/s12910-020-00573-4
Abstract: Background In the coming years, surrogate decision-making is expected to become highly prevalent in Japanese clinical practice. Further, there has been a recent increase in activities promoting advance care planning, which potentially affects the manner… read more here.
Keywords: decision; japanese clinical; grounds surrogate; surrogate decision ... See more keywords
Concerns of surrogate decision makers for patients with acute brain injury
Sign Up to like & getrecommendations! Published in 2020 at "Neurology"
DOI: 10.1212/wnl.0000000000009406
Abstract: Objective To determine whether groups of surrogates for patients with severe acute brain injury (SABI) with poor prognosis can be identified based on their prioritization of goals-of-care (GOC) decisional concerns, an online survey of 1,588… read more here.
Keywords: decision makers; surrogate decision; acute brain; brain injury ... See more keywords