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   Articles with "surrogate decision" as a keyword



Conceptualization of Surrogate Decision-making Among Spokespersons for Chronically Ill Patients

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recommendations! Published in 2022 at "JAMA Network Open"

DOI: 10.1001/jamanetworkopen.2022.45608

Abstract: Key Points Question How do patient spokespersons distinguish surrogate medical decision-making from patient advocacy? Findings This qualitative study of a subset of 36 participants in a randomized clinical trial found substantial variability in how spokespersons… read more here.

Keywords: conceptualization surrogate; decision making; decision; making among ... See more keywords

Quality of life of persons living with HIV and congruence with surrogate decision-makers

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recommendations! Published in 2018 at "Quality of Life Research"

DOI: 10.1007/s11136-018-2002-5

Abstract: PurposePhysicians and caregivers rate patient quality of life (QOL) lower than patients rate their own QOL. This study investigated discrepancies between self-assessments of patient QOL by adults with HIV and their surrogate decision-makers.MethodsWe collected baseline… read more here.

Keywords: quality life; life; decision makers; surrogate decision ... See more keywords
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Visualizing surrogate decision trees of convolutional neural networks

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recommendations! Published in 2020 at "Journal of Visualization"

DOI: 10.1007/s12650-019-00607-z

Abstract: Abstract Interpreting the decision-making of black boxes in machine learning becomes urgent nowadays due to their lack of transparency. One effective way to interpret these models is to transform them into interpretable surrogate models such… read more here.

Keywords: decision; neural networks; black boxes; surrogate decision ... See more keywords

The Trial of Ascertaining Individual Preferences for Loved Ones' Role in End-of-Life Decisions (TAILORED) Study: A Randomized Controlled Trial to Improve Surrogate Decision Making.

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recommendations! Published in 2017 at "Journal of pain and symptom management"

DOI: 10.1016/j.jpainsymman.2017.07.004

Abstract: CONTEXT Patients with terminal illnesses often require surrogate decision makers. Prior research has demonstrated high surrogate stress, and that despite standards promoting substituted judgment, most patients do not want their surrogates to make pure substituted… read more here.

Keywords: decision; trial; control; surrogate decision ... See more keywords
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Effect of Advance Care Planning on Surrogate Decision Makers' Preparedness for Decision Making: Results of a Mixed-Methods Randomized Controlled Trial.

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recommendations! Published in 2020 at "Journal of palliative medicine"

DOI: 10.1089/jpm.2020.0238

Abstract: Background: Advance care planning (ACP) is intended to help patients and their spokespersons prepare for end-of-life decision making, yet little is known about what factors influence the extent to which spokespersons feel prepared for that… read more here.

Keywords: decision; trial; surrogate decision; decision making ... See more keywords

Surrogate Decision Makers Need Better Preparation for Their Role: Advice from Experienced Surrogates.

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recommendations! Published in 2022 at "Journal of palliative medicine"

DOI: 10.1089/jpm.2021.0283

Abstract: Background: Surrogate decision makers are required to make difficult end-of-life decisions with little preparation. Little is known about what surrogates may need to adequately prepare for their role, and few resources exist to prepare them.… read more here.

Keywords: decision; decision makers; surrogate decision; role ... See more keywords

Do They Have a Choice? Surrogate Decision-Making After Severe Acute Brain Injury.

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recommendations! Published in 2023 at "Critical care medicine"

DOI: 10.1097/ccm.0000000000005850

Abstract: OBJECTIVES In the early phase of severe acute brain injury (SABI), surrogate decision-makers must make treatment decisions in the face of prognostic uncertainty. Evidence-based strategies to communicate uncertainty and support decision-making are lacking. Our objective… read more here.

Keywords: decision; surrogate decision; decision making; brain injury ... See more keywords

Nontraditional Surrogate Decision Makers for Hospitalized Older Adults

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recommendations! Published in 2018 at "Medical Care"

DOI: 10.1097/mlr.0000000000000890

Abstract: Background: Without advanced preparation of legal documents, state law determines who may serve as a surrogate decision maker for patients in hospitals. Objectives: To examine the relationship characteristics associated with traditional versus nontraditional health care… read more here.

Keywords: decision; decision makers; hospitalized older; surrogate decision ... See more keywords

The experience of surrogate decision‐making and deciphering critically ill patient values: A qualitative study

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recommendations! Published in 2024 at "Nursing in Critical Care"

DOI: 10.1111/nicc.13171

Abstract: Surrogate decision–makers (SDMs) who make decisions for critically ill patients often face great challenges. Although shared decision‐making has been advocated, its implementation has been less than satisfactory. read more here.

Keywords: making deciphering; experience surrogate; decision making; surrogate decision ... See more keywords

Familial Roles in Surrogate Decision‐Making for Mechanically Ventilated Patients in the Respiratory Intensive Care Unit: A Qualitative Study

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recommendations! Published in 2025 at "Nursing in Critical Care"

DOI: 10.1111/nicc.70203

Abstract: In China, when patients need mechanical ventilation treatment, alternative decision‐makers are influenced by many factors before making a decision. read more here.

Keywords: familial roles; decision making; care; surrogate decision ... See more keywords

Randomized Trial of the Four Supports Intervention for Surrogate Decision Makers in Intensive Care Units.

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recommendations! Published in 2024 at "American journal of respiratory and critical care medicine"

DOI: 10.1164/rccm.202405-0931oc

Abstract: RATIONALE Individuals acting as surrogate decision-makers for critically ill patients frequently struggle in this role and experience high levels of long-term psychological distress. Prior interventions designed solely to improve information sharing between clinicians and family… read more here.

Keywords: decision makers; care; surrogate decision; intervention ... See more keywords