Understanding the Symptoms and Impacts Experienced by People with Relapsing–Remitting MS: A Qualitative Investigation Using Semi-Structured Interviews
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DOI: 10.1007/s40120-024-00584-y
Abstract: Multiple sclerosis (MS) is a disabling disease with unpredictable clinical manifestations. As clinical assessments may not fully capture the impact of MS on quality of life, they can be complemented by patient-reported outcome (PRO) measures… read more here.
Keywords: semi structured; relapsing remitting; life; symptoms impacts ... See more keywords
PIN167 Patient-Reported Outcomes to Capture the Signs, Symptoms and Impacts of COVID-19 and the IMPACT of the Pandemic on People with and without Infection
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DOI: 10.1016/j.jval.2020.08.1008
Abstract: Objectives: In this unprecedented era of conducting clinical research during a global pandemic a Patient-Reported Outcomes (PRO) tool is required to (1) provide a comprehensive epidemiological understanding of SARS-COV-2 (COVID-19) symptoms, clustering and resolution;(2) provide… read more here.
Keywords: reported outcomes; signs symptoms; infection; symptoms impacts ... See more keywords
Understanding the impact of non-alcoholic steatohepatitis with metabolic comorbidities on adults: a real-world qualitative study
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DOI: 10.1080/03007995.2024.2319820
Abstract: Abstract Objective Limited real-world evidence exists to better understand the patient experience of living with symptoms and impacts of non-alcoholic steatohepatitis (NASH). This study aimed to (1) describe patient-reported perspectives of NASH symptoms and impacts… read more here.
Keywords: treatment; nash symptoms; real world; symptoms impacts ... See more keywords
Patient experience of symptoms and impacts of COVID-19: a qualitative investigation with symptomatic outpatients
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DOI: 10.1136/bmjopen-2021-055989
Abstract: Objectives There is little in-depth qualitative evidence of how symptoms manifest themselves in outpatients with COVID-19 and how these in turn impact outpatients’ daily lives. The objective of the study was therefore to explore the… read more here.
Keywords: patient experience; symptoms impacts; impacts covid; daily life ... See more keywords
Gaucher disease type 3 from infancy through adulthood: a conceptual model of signs, symptoms, and impacts associated with ataxia and cognitive impairment
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DOI: 10.1186/s13023-025-03654-y
Abstract: Gaucher disease type 3 (GD3) is a lysosomal storage disease characterized by diverse neurological and systemic manifestations. Symptoms of ataxia, cognitive impairment, and other systemic symptoms profoundly impact daily activities and the quality of life… read more here.
Keywords: disease; ataxia cognitive; signs symptoms; conceptual model ... See more keywords
Relative Meaningfulness and Impacts of Symptoms in People with Early-Stage Parkinson's Disease.
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DOI: 10.3233/jpd-225068
Abstract: BACKGROUND Patient perspectives on meaningful symptoms and impacts in early Parkinson's disease (PD) are lacking and are urgently needed to clarify priority areas for monitoring, management, and new therapies. OBJECTIVE To examine experiences of people… read more here.
Keywords: symptoms impacts; early stage; disease; parkinson disease ... See more keywords
Mapping Relevance of Digital Measures to Meaningful Symptoms and Impacts in Early Parkinson's Disease.
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DOI: 10.3233/jpd-225122
Abstract: BACKGROUND Adoption of new digital measures for clinical trials and practice has been hindered by lack of actionable qualitative data demonstrating relevance of these metrics to people with Parkinson's disease. OBJECTIVE This study evaluated of… read more here.
Keywords: relevance; symptoms impacts; digital measures; parkinson disease ... See more keywords