Communicating a neonatal diagnosis of Down syndrome to parents
Sign Up to like & getrecommendations! Published in 2022 at "Archives of Disease in Childhood"
DOI: 10.1136/archdischild-2021-323542
Abstract: SEARCH STRATEGY PubMed and MEDLINE were searched in October 2020 for eligible articles regarding Down syndrome using the following search terms: ((Down(s) syndrome OR Trisomy 21 OR partial Trisomy 21 OR mosaicism) AND (neonate OR… read more here.
Keywords: neonatal diagnosis; communicating neonatal; diagnosis; diagnosis syndrome ... See more keywords
Down Syndrome Cures: Perspectives of People With Down Syndrome and Their Parents.
Sign Up to like & getrecommendations! Published in 2022 at "American journal on intellectual and developmental disabilities"
DOI: 10.1352/1944-7558-127.3.194
Abstract: Down syndrome (DS) research is advancing rapidly, yet efforts have raised ethical questions. This mixed methods study describes views of people with DS (self-advocates) and their parents regarding medical interventions for DS. Responses from 35/171… read more here.
Keywords: cures perspectives; syndrome cures; self advocates; syndrome parents ... See more keywords