CHARTING THE TERRITORY: END-OF-LIFE TRAJECTORIES FOR CHILDREN WITH COMPLEX NEUROLOGICAL, METABOLIC AND CHROMOSOMAL CONDITIONS.
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DOI: 10.1016/j.jpainsymman.2020.08.033
Abstract: OBJECTIVES For parents, family or clinicians of children with rare, life-threatening conditions there is little information regarding likely symptoms, illness trajectory and end-of-life care. This descriptive analysis of a bereaved cohort recruited in the Charting… read more here.
Keywords: charting territory; end life; life trajectories; territory end ... See more keywords