Meeting the needs of patients with ultrarare diseases.
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DOI: 10.1016/j.molmed.2021.12.002
Abstract: Patients with ultrarare diseases present unique challenges to the health care systems of developed economies that demand novel approaches, beginning with achieving a diagnosis and concluding with long-term treatment. The challenges derive from numbers. On… read more here.
Keywords: meeting needs; ultrarare diseases; needs patients; patients ultrarare ... See more keywords