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Published in 2024 at "Pediatric Pulmonology"
DOI: 10.1002/ppul.27360
Abstract: Primary ciliary dyskinesia (PCD) is a rare, inherited disease characterized by impaired motile ciliary function leading to chronic sinopulmonary disease, persistent middle ear effusions, laterality defects, and subfertility. Over fifty PCD‐associated genes have also been…
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Keywords:
understanding primary;
ciliary dyskinesia;
disease;
pcd ... See more keywords
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Published in 2020 at "Journal of General Internal Medicine"
DOI: 10.1007/s11606-020-05877-0
Abstract: Specialists and primary care providers (PCP) generally manage complex chronic diseases in silos, and delineation of responsibilities is often unclear. We aimed to compare the similarities and differences in perception and practice across three complex…
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Keywords:
understanding primary;
delineation responsibilities;
primary care;
care ... See more keywords