Navigating the unknown: A content analysis of the unique challenges faced by adults with rare diseases
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DOI: 10.1177/1359105319828150
Abstract: Living with a rare disease can present unique challenges not shared by individuals with common diseases. A content analysis explored which challenges, in participants’ own words, are most prevalent across a sample of individuals (n = 1157)… read more here.
Keywords: navigating unknown; unknown content; rare diseases; content analysis ... See more keywords