A model for building a national, patient-driven database to track contraceptive use in women with rare diseases.
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DOI: 10.1093/jamia/ocab224
Abstract: Data on the safety and effectiveness of contraception among women with rare diseases are critical and sorely lacking. To fill this gap, we propose a national, patient-driven database that tracks contraceptive safety and effectiveness among… read more here.
Keywords: rare diseases; women rare; national patient; patient driven ... See more keywords