Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis.
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DOI: 10.1111/cch.12461
Abstract: BACKGROUND In the last decade, the number of children with life-limiting and life-threatening conditions in England has almost doubled, and it is estimated that worldwide, there are 1.2 million children with palliative care needs. Families… read more here.
Keywords: decision; limiting conditions; children life; life limiting ... See more keywords
Advanced care planning 5 years on: An observational study of multi‐centred service development for children with life‐limiting conditions
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DOI: 10.1111/cch.12643
Abstract: AIM The purpose of this study was to compare how planning has developed over the 5 years across a range of children's health care services in a single U.K. city. BACKGROUND Advanced planning for end of… read more here.
Keywords: health care; health; children life; study ... See more keywords
‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses
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DOI: 10.1136/archdischild-2015-310345
Abstract: The relationship between parents and clinician is critical to the care and treatment of children with life-limiting conditions (LLCs) and life-threatening illnesses (LTIs). This relationship is built and maintained largely in consultations. In this article… read more here.
Keywords: children life; life threatening; life limiting; limiting conditions ... See more keywords
Gastrointestinal Symptoms in Children With Life-Limiting Conditions Receiving Palliative Home Care
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DOI: 10.3389/fped.2021.654531
Abstract: Context: Children with life-limiting diseases suffer from gastrointestinal (GI) symptoms. Since the introduction of specialized palliative home care (SPHC) in Germany, it is possible to care for these children at home. In phase 1 of… read more here.
Keywords: phase; home; gastrointestinal symptoms; children life ... See more keywords